The frenzy of debate and dialogue stemming from Canadian Parliament’s discussion of Bill C-384[1] has brought to light many concerns regarding the potential legalization of euthanasia and physician assisted suicide (PAS).[2] The Bill was defeated Wednesday, April 21 by a vote of 228-59,[3] however, significant concerns were brought to light vis-à-vis this discussion. Furthermore, the National Assembly of Québec will launch a public debate this autumn concerning the topic of dying with dignity.[4] Thus, continued awareness of this topic is necessary. While opponents of euthanasia and PAS voice legitimate and frequently obvious objections, the purpose of this article is to draw to light a less obvious, and frequently overlooked potential consequence of legalizing euthanasia and PAS. The passing of any euthanasia or PAS legislation threatens to diminish the quality of palliative care.
International Precedent
While some argue that palliative care is not antagonistic to euthanasia and PAS, and, in fact, that all practices coevolved and are complementary,[5] Ottawa based physician, palliative care professional, and professor of medicine at the University of Ottawa, Jose Pereira, disagrees. Pereira holds that the legalization of euthanasia and PAS in Canada could reduce the quality of palliative care available to the terminally ill.[6] Pereira’s concern stems from his experience. While Pereira was serving at a hospital in Geneva, Switzerland, PAS came into practice. As a result, palliative care programmes were cut, and the number of palliative care physicians serving in the hospital decreased.[7]
To be sure, Pereira’s concerns are not exclusive to Switzerland. Decline in the quality of palliative care, similar to that which Pereira hypothesizes and has observed, is visible in the United States state of Oregon, where PAS is legal. In Oregon, requests for palliative care are declined by institutions to those terminal-patients lacking health insurance. In such an instance, a terminal-patient is left with the decision to suffer pain, or opt for monetarily affordable physician assisted suicide.[8] Should euthanasia and physician assisted suicide be legalized in Canada, similar situations could conceivably appear in Canadian hospitals – largely because euthanasia and PAS are less expensive than quality palliative care.
While the United States evidently poses a distinct challenge due to its historic lack of universal healthcare, abuses resulting from legalization of euthanasia and PAS in Canada remain likely. Consider that Switzerland offers state sponsored healthcare. There, the efficiency and economy of euthanasia deem it fiscally favourable for the Swiss government. Canada’s healthcare, like Switzerland’s may prioritize expediency over integrity.
In areas where euthanasia and PAS are legal, these practices already present an even more visible threat to the quality of palliative care. Consider that in the Netherlands there are annually over one thousand instances of involuntary euthanasia.[9] Such high occurrence of involuntary euthanasia is evidence of the potential for the abuse of legislation favourable to the practice of euthanasia and PAS. If the strictest of legal framework cannot successfully contain the practice of euthanasia, it should not be legalized to begin with. The legalization of euthanasia and PAS, and specifically its delivery from the hands of palliative care professionals is a particularly frightening prospect. These professionals are trusted by terminal-patients to defend to the terminal-patient’s last breath, the inviolability of human life. Even if palliative care workers are not responsible for delivering death to terminal-patients, legalization of euthanasia and/or PAS threatens to diminish the trust and prestige held by palliative care, as euthanasia and PAS are popularly associated with end of life medical care.[10]
Quality of Palliative Care
Palliative care “allow[s] the person to die with a sense of respect, [and] a sense of dignity without that loss of control which they generally feel. [Palliative care is] a way which allows them to live the best that they can while they’re dying.”[11] Palliative care is concerned with the overall wellbeing of the patient, and not exclusively the physical needs of the patient. Palliative care is concerned with caring for the terminal-patient, in order to render her or him as comfortable as possible during the terminal-patient’s final season of life. The quality of palliative care has increased tremendously in recent decades. The holistic focus of palliative care, tailored to the terminal-patient’s emotional, physical, psychological, and spiritual needs render palliative care a discipline which ensures the terminal-patient’s passing can be made easier and even “beautiful.” Where all these needs are addressed by qualified professionals and family members, a terminal-patient is able to enjoy her or his last months, weeks, and days in this life.[12]
Evidently, the continued quality of palliative care is something quite consciously conducted. Contrastingly, euthanasia and PAS threaten the quality of palliative care as these practices discourage would be professionals from entering the discipline for fear of having to perform such practices which are opposed.[13] The World Health Organization’s definition of palliative care clearly states that the discipline does not intentionally hasten death.[14] If euthanasia and PAS ever become practiced in the palliative care units of Canadian hospitals, undoubtedly, professional integrity would decline, and the relationship of trust and care between physician and patient would be shaken.[15]
Public Perception
The legalization of euthanasia and PAS is not a topic to be gingerly considered. In a democratic society, public opinion is frequently considered the ultimate standard. However, with issues relating to human life, decisions must be thoroughly measured, beyond even public perception. The inviolability of human life is poorly regarded in a society which is eager to hasten life’s end. Values held, even by the potential minority of a society, should be carefully considered.[16] Evidently, proponents of euthanasia and PAS misunderstand the reservations of opponents of the legalization of euthanasia and PAS. Consider the following section extracted from Québec’s National Assembly’s Dying with Dignity: Consultation Document;
Opponents [of the legalization of euthanasia and PAS] believe that the ties of trust between patient and physician could be shaken. They fear that if a physician can carry out euthanasia, he or she will not do everything possible to keep the patient alive.[17]
Matters of Finance
Insofar as palliative care does not seek to hasten the terminal-patient’s passing, neither does it intend to prolong it.[18] The National Assembly’s understanding of euthanasia and PAS opponents’ concern is mistaken, because it is not these opponents’ wish that the palliative professional artificially “keep the patient alive.” The concern is that in a healthcare system where euthanasia is legal, the physician will not have incentive to do everything possible to care for, and keep the patient comfortable. Given the expense of quality palliative care, it is likely that with the availability of an alternative, the more expensive option will be under prioritized. Such will undoubtedly affect also the long term development of palliative care as it is likely that funding which provides for research of the discipline will be undercut. The possibility of such decline in the quality of palliative care is even more conceivable in a healthcare climate such as that of Switzerland and Canada, where healthcare provisions are state sponsored.
Quite significantly, euthanasia and PAS threaten the quality of palliative care because of the lesser monetary expense of the former. No one wishes to consider their healthcare provider so frugal and pragmatic as to choose the less expensive of two options, however, as earlier mentioned, in the state of Oregon, where healthcare is not universally provided, the cheaper route of PAS is more accessible. Where a more expedient and practical route is available, it is human nature and commercial protocol for such an option to be prioritized above others. This trend may result prominently within palliative care in Canada should euthanasia and PAS become legalized. While palliative care may remain an option in the event of the legalization of euthanasia and physician assisted suicide, certainly, resources available for the advancement and improvement of palliative care could decline.
A Pertinent Issue
Although Bill C-384 was overturned, consideration of euthanasia and PAS remains. Such is evidenced through recent developments spearheaded by the National Assembly of Québec. Thus, continued awareness of these issues is pertinent. If physicians begin to perform euthanasia and/or PAS, terminal-patients will fear their physicians have an intent to kill, instead of trusting physicians' intent to care.[19] The legalization of euthanasia and PAS will negatively affect the quality of palliative care.
Notes:
[1] Note: Bill C-384 was proposed by Bloc Québecois MP Francine Lalonde, and “would have allowed doctors to avoid murder and manslaughter charges for helping terminally ill people or those in severe chronic pain to die,” [CBC News and The Canadian Press, “Assisted suicide voted down by MPs,” in Blair Shewchuk (ed.), CBC News, (Canada, Canadian Broadcasting Corporation; Wednesday, April 21, 2010). Pg. 1. Accessed at ( http://www.cbc.ca/canada/story/2010/04/21/parliament-euthanasia-bill-vote.html ) on Friday, June 11, 2010.].
[2] Note: Physician assisted suicide hereafter to be referred to as PAS.
[3] CBC News and The Canadian Press, “Assisted suicide voted down by MPs.” Pg. 1.
[4] Rhéal Séguin, “Quebec committee to decide life and death questions: Public will have chance to weigh in on whether euthanasia, assisted suicide should be legalized,” in John Stackhouse, Sylvia Stead, Neil A. Campbell, Sinclair Stewart, Gregory Boyd, and Christina Vardanis (eds.), The Globe and Mail, (Toronto, CTVglobemedia; Tuesday, May 25, 2010). Pg. 1. Accessed at [ http://www.theglobeandmail.com/news/national/quebec-committee-to-decide-life-and-death-questions/article1580932/?cmpid=rss1 ] on Wednesday, June 16, 2010.
Note: The Select Committee on Dying with Dignity released a document entitled Dying with Dignity: Consultation Document (cited later) which implies through testimonial and anecdote a position of the National Assembly of Québec prominently in favour of the legalization of euthanasia and PAS.
[5] Jan Bernheim, Reginald Deschepper, Wim Distelmans, Arsène Mullie, Johan Bilsen, and Luc Deliens, “Development of palliative care and legalisation of euthanasia: antagonism or synergy?,” in Fiona Godlee (ed.), BMJ: British Medical Journal, Volume 336 Issue 7649, (London, UK; BMJ Group; April 19, 2008). Pg. 866.
Note: Bernheim et al submit that developments in palliative care and practices of euthanasia and PAS in Belgium during the 20th century were driven by shared pioneering “workers.” (Pp. 864, 865).
[6] CBC News, “Doctor decries euthanasia bill,” in Blair Shewchuk (ed.), CBC News. (Canada, Canadian Broadcasting Corporation; Thursday, October 1, 2009). Pg. 1. Accessed at [ http://www.cbc.ca/canada/ottawa/story/2009/10/01/ottawa-euthanasia-bill-doctors-pereira.html ] on Thursday, June 10, 2010.
[7] Ibid.
[8] Jean Echlin, Death with Dignity or Obscenity? (Toronto, The deVeber Institute; 2009). Pp. 1-2.
[9] Stephan W. Sahm, “Palliative Care versus Euthanasia. The German Position: The German General Medical Council's Principles for Medical Care of the Terminally Ill.,” in H. Tristram Engelhardt (ed.), The Journal of Medicine & Philosophy, Volume 25 Issue 2, (Oxford, UK; Oxford University Press; April, 2000). Pp. 211, 212.
Note: Involuntary euthanasia is an instance of euthanasia being carried out against the wishes of a competent patient.
[10] Jose Pereira, Dominique Anwar, Gerard Pralong, Josianne Pralong, Claudia Mazzocato, and Jean-Michel Bigler, “Assisted Suicide and Euthanasia Should Not Be Practiced in Palliative Care Units.,” in Charles F. von Gunten (ed.), Journal of Palliative Medicine, Volume 11 Issue 8, (New Rochelle, NY; Mary Ann Liebert, Inc.; October, 2008).Pg. 1074.
[11] Paul Zeni, Compassionate End of Life Care for Adults with Developmental Disabilities, DVD, (Toronto, The deVeber Institute for Bioethics and Social Research, and L’Arche Toronto; 2009).
[12] Sharon Baker (Director of Palliative Care at London’s University of Western Ontario University Hospital/Health Sciences Centre), Telephone Interview. Interview conducted Monday, July 27, 2009.
[13] Ibid., pg. 1075.
[14] Ibid., pg. 1073; and, World Health Organization, “Palliative Care,” in WHO, World Health Organization Website. Accessed at [ http://www.who.int/cancer/palliative/en/ ] on Friday, June 11, 2010.
[15] Pereira et al, Pg. 1073.
[16] Séguin quoting Liberal MNA Geoffrey Kelley. Pg. 1.
[17] Select Committee on Dying with Dignity, Dying with Dignity: Consultation Document, (Québec, PQ; Assemblée nationale du Québec; 2010). Pg. 18. Accessed at [ http://www.assnat.qc.ca/media/Process.aspx?MediaId=ANQ.Vigie.Bll.DocumentGenerique_34839en&process=Default&token=ZyMoxNwUn8ikQ+TRKYwPCjWrKwg+vIv9rjij7p3xLGTZDmLVSmJLoqe/vG7/YWzz ] on Wednesday, June 16, 2010.
[18] World Health Organization, “Palliative Care.”
[19] Jean Echlin, "A dance of death," in John Coleman (ed.), The Windsor Star, (Windsor, ON; September 22, 2009). Pg. 4.
Activism…yet another broad discussion topic which I'm attempting to address with one short post. I think, however, that the way by which I arrived at this topic is fairly interesting, so please read on.
